Dylann’s Dash was inspired and created in dedication to a little girl who was born with arthrogryposis. This is a rare congenital condition that occurs in about 1 in every 3000 live births. Due to how rare the condition is, there hasn’t historically been funds put towards raising awareness and support in the communities. AMCSI is a non-profit organization that was created to do just this. Dylanns Dash is also working to increase MN supporting by raising funds to to help with financial hardships that individuals may experience in accessing the care they need. As Dylann's Dash has grown, we have also donated to Shriners Hospital MN and Philadelphia.
AMCSI
OUR MISSION: To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of Conferences, Meetings, and Studies.
OUR VISION: To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).
To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.
More information can be found on Dylann’s journey as well as about ACMSI at the following websites:
www.dylannparadeis.blogspot.com
Video:
We were told Dylann would never walk. Through the support of other families and attending a conference, we met our current MD who has made it possible for Dylann to have taken her first independent steps April 6th, 2018!
ABOUT US
